tag:blogger.com,1999:blog-31836772011-11-27T18:26:36.061-05:00All about Maddy and her life with Cornelia deLange SyndromeKimhttp://www.blogger.com/profile/00544415025259818809noreply@blogger.comBlogger61100tag:blogger.com,1999:blog-3183677.post-33645804651017054592008-09-21T06:45:00.003-04:002008-09-21T07:43:41.544-04:00

The challenge this week is to write about the most memorable experience we've had dealing with the public reaction to our child with CdLS. This is a hard one to narrow down for me! Especially in the early years, we got lots of strange comments and questions. Not so much now ~ people are used to seeing us out and about with Maddy, and she has a whole community of people who know and love her

Kimhttp://www.blogger.com/profile/00544415025259818809noreply@blogger.com6tag:blogger.com,1999:blog-3183677.post-31687448943919665042008-09-14T20:37:00.000-04:002008-09-15T21:15:57.839-04:00

All of our pleasures are simple! :)Maddy's favorite activity is watching football on television ~ truly simple. Just turn on the TV, find a football game, and our girl is happy. She is, of course, enamored of her Dallas Cowboys, but is happy watching any game.Thank goodness for the NFL Network ~ we have football year round. Rocking in Daddy's chair is the first, and still best, simple pleasure.

Kimhttp://www.blogger.com/profile/00544415025259818809noreply@blogger.com5tag:blogger.com,1999:blog-3183677.post-56561796139877598492008-09-10T23:30:00.001-04:002008-09-11T02:54:38.124-04:00

I chose these pictures for Wordless Wednesday because they show Maddy at school, doing something she's never done before ~ coloring on her own. She'll be 12 years old in November, and she still amazes me every single day. Never giving up, always learning and achieving new things ~ that's my little warrior princess!

Kimhttp://www.blogger.com/profile/00544415025259818809noreply@blogger.com4tag:blogger.com,1999:blog-3183677.post-69946341031839942352008-08-03T23:29:00.003-04:002008-08-03T23:44:49.964-04:00

I participate in a bulletin board for parenting special needs children. Actually, for several years, I moderated that forum. I gave up my moderator duties last year after a long thought process ~ mostly related to my own illness and ability to participate as fully as I thought I should.Through the years, the most frequently asked question(s) on that board were about pregnancy and test results ~

Kimhttp://www.blogger.com/profile/00544415025259818809noreply@blogger.com1tag:blogger.com,1999:blog-3183677.post-239289109301012972006-12-15T03:21:00.000-05:002006-12-15T03:22:56.546-05:00

I think it's time to start updating this page again ~ I cannot believe how long it's been since I posted an entry!Anyway, since the CdLS-Kids list is now keeping track of blogs, I figured I'd better jump back in. I'll post my first "challenge" entry tomorrow!

Kimhttp://www.blogger.com/profile/00544415025259818809noreply@blogger.com0tag:blogger.com,1999:blog-3183677.post-65314942001-10-22T15:38:00.000-04:002008-09-11T02:47:17.646-04:00

Welcome to Maddy's new blog! I decided to start here, since I don't really have time to update her web site on a regular basis. Besides, the web site seems to always be down. I'll leave it up, but for now all updates will happen here instead. Maddy is doing pretty well right now. She has had the usual battles with ear infections and upper respiratory infections this fall, plus a really nasty

Kimhttp://www.blogger.com/profile/00544415025259818809noreply@blogger.com0